Saturday, January 20, 2007


Dear Rachel, and all my new internet friends,

This is my nephew and Godson Noah. He is three years old.

Here he is on Christmas Eve with his cousin Rose and his sister Ramona. Noah has a condition called neurofibromatosis, or NF. This condition is mainly characterized by tumor growth on nerves and the skin, as well as bone deformities. People with NF are also more prone to developing learning disabilities and cancer. Thank goodness, so far Noah only has had a few skin tumors which the doctors have been able to remove. We are praying that his NF never gets any worse than it is now. However, many children and adults have it much worse than Noah.

Noah's dad, my brother-in-law, Frank, is running a marathon in June to raise awareness of NF and to raise money for the Children's Tumor Foundation, which offers support to patients and their families and seeks to end NF through research.

Frank's goal is to raise $5,000 for the CTF. I am asking you to spread the word about his effort, and, if you can, to donate to the cause. Even $5 or $10 would be a step toward his goal. Frank's website can be found here, and it is very easy and safe to donate. Even if you can't give money, please let others know about this disease and the search for a cure. I especially ask my new friends in Blogland to help spead the word.

Thank you,

Much love,


1 comment:

Pixie said...

hi i was doing research and i found this page. i am also a patient with NF. i think Noah is such an adorable little boy!